Showing posts with label Congress. Show all posts
Showing posts with label Congress. Show all posts

Friday, December 26, 2014

Project: We are Autism and Aspergers; we can speak

Project We are Autism and Aspergers is us speaking with our own voice, telling the world who we are and telling our government how our lives can be better improved, with our own words. When we as a community of people stay silent we are doing an injustice to ourselves. Not all of us are capable of speaking for ourselves, some draw and some have trusted advocates and family members who speak for them and it is time that we stand up and let the world know that we are human beings.This community has had a stigma and portrait painted of them that is completely inaccurate and organizations like Autism Speaks have done nothing but increase the reputation of brokenness and inferiority. Project We are Autism and Aspergers is about changing the face of who we are from tragic disasters to human beings.

What would you tell the world if you spoke out for yourself? What would you say to the government to improve the lives of spectrum people? What is life like for you living as a spectrum person? This is our story to tell and it should be told by the very people who live their lives as Autistic and Asperger people. Our stories and our needs should not come through the voices of an outside organization who views us as a mystery, a puzzle, and a mess. Our stories should come from the reality of who we are by ourselves and the people who love and know us. It is our responsibility to stand up for our own needs and our own lives.

Allowing an organization like Autism Speaks to continue their voice in place of us will only  allow for the on going issues to continue that our community faces daily:

  1. Media’s continual use of the word “suffering” as a description of our community
  2. Media’s assumption that every school shooting should be blamed on Aspergers
  3. We are broken
  4. We are medical disaster
  5. We are unable of making decisions that are healthy for our community therefore we need to be spoken for.
  6. Job discrimination.
  7. Assisted and non-assisted living programs for spectrum people.
  8. Health care coverage for Autistic related services.
  9. Funds for families requiring services for the young ones.
  10. Spending more time working with teachers and ABA therapist for those of us higher on the spectrum who can offer valuable information for the ones who are not where we are.

Autism Speaks cannot bring to the table the life experience of a spectrum person and they have no interest in doing so. They are an organization that runs like a corporation utilizing funds in such a questionable fashion and it is our opinion they should be investigated by Congress. We feel that the picture painted by them of our community has made us look less than human and therefore undeserving of equal rights with dignity and respect. Silencing their voice and allowing our own words to ring through the media and the halls of congress is the only way to reverse the years of tainted and dishonest chatter about who we are and what we need. The last thing we need is another awareness campaign, we deserve and are entitled to acceptance for the unique individuals that we are.

Project We are Autism and Aspergers will run for the next 30 days. We invite you to write to us about who you are and what we as a community needs. You can submit photos, drawings, statements and videos. Videos can be done directly from our site using a mobile device www.drlorenabrownlee.com scroll over videos click the human project and record whatever you would like or you can make submissions through lorenabrownlee@gmail.com. It is time to change the face of our community from broken mysteries to human beings.

We will also be running the Project through social media. Feel free to take a photo from below and use it as a banner or icon image to invite other spectrum people to join the movement of changing the face of who we are. Use hashtags #ProjectAutism #ProjectAspergers #WeAreAutism #WeAreAspergers or #Project we are #Autism and #Aspergers and follow us on Twitter @brownlee_dr Facebook Dr. Lorena Brownlee or Google Plus +LorenaBrownleeDr 

 










Monday, December 22, 2014

#AutismSpeaks, I am not a Medical Disaster

Last night I watched the Documentary, Sounding the Alarm, Battling the Autism Epidemic. I as a spectrum person walked away with this one thought, If you are my advocate I am in big trouble. Using statements like Autism is a medical disaster or describing us as troubled, difficult or even ensuing family troubles conveys the statement to people like myself that you do not favor our kind. A lot of us, spectrum people, go on to do many good things such as acting, writing, or activism. The spectrum is so wide ranging that there are even a few of us you do not know about whom have gone onto become Doctors, Lawyers and Engineers. The bottom line is that we are human being and deserve to be referred to as such.

I completely understand the struggle that you as Neurologically Typical people have in understanding us as people in what we think and how we feel. I also understand how difficult it must be for you as Neurologically Typical people to deal with one of our meltdowns or inability to communicate, perhaps adding one of us who are higher functioning to your staff would serve to enlighten your understanding and encourage you to refrain from using such derogatory language to describe what many of us as adults find as an asset to who we are and become. When you speak about us in such a negative fashion you only further the struggle we have with mainstream media and the very intolerable way they describe us as suffering beings.

I am not suffering, nor am I medical disaster or troubled person and many spectrum individuals I know are not either. We will never do things the way you do them nor will we ever be just like you but we are human beings who deserve to be treated with respect and dignity in both speech and actions. We stand in agreement with you that Congress does need to take up our case and Insurance companies do need to serve our families better. However,  if you are going to continue advocating for us and suggesting a governmental office for an Autism Zar, perhaps really taking the time to speak to higher functioning spectrum people and understanding our position in the world from the very different perspective we hold, would serve all far more greater than to assume all things about us from Neurologically Typical standpoint. After all this is about advocating for spectrum people not just the Neurologically Typical family members. .

Sunday, December 14, 2014

I once followed an African American Homeless Man with Mental Illness for 3 Years

The Stats
49% of all homeless people in the US are African American. Statistics say that African American families are 7 times more likely to become homeless than Caucasian families. Mental Illness brings another dynamic to the situation as 30% of homeless people suffer from a form of mental illness and 23% of homeless people are in the 18-30 years of age group and mainly male. I followed the life of one homeless man in Silicon Valley for 3 years. During my time with him I met others just like him.  All African American, all suffering from mental illness with conditions ranging from Severe Depression to Schizophrenia, all were completely alone.  Some were scared, angry and simply trying to survive on streets in San Jose.  
I am a Quiet Observer
Every morning for 2 years I would go out to a parking lot at 4 am and drop off food for a young African American man who slept in the same spot every night. He would never speak to me, generally he would just walk away from me and wander off talking to himself. He had been on the street so long the soles of his shoes were completely worn away, his pants had fallen apart and he used a shirt or a blanket to cover his bare butt so no one could tell he was practically naked. I did leave clothes and backpacks full of survival items, but he would never take them and he would throw them away.
He did not have a drug problem and he did not drink, he was sick and really needed help. Most homeless people find a way to a shelter or bathroom to wash up but this man would not go. He did not trust anyone and the few people you would catch him have a small conversation with never asked about clothes or a shower they only spoke of God to him or offered a cigarette.  He was deteriorating on the streets even his walk had changed, he limped and was slow and tired and only 20 years of age.
I began campaigning for this man, talking to the police and EMT workers in the area just trying to raise awareness and concern for his condition, but always walked away with the same response. He says that he is fine so we cannot help or he passed or evaluation we cannot do anything. A half-naked man who has not showered in what appears to be 2 years talking to himself was not OK and their evaluation system is broken.
Family, Mental Illness and the Law
Once a person turns 18 parents have little to no room of helping their kids when they become mentally ill. The catch to this as I learned from the Ritter House in San Rafael California is that for most families the signs and symptoms can be mild throughout childhood and one day generally between 18-23 years of age, a person becomes full blown with their mental illness leaving parents in a legal uphill battle to help. Due to the fact that these medical evaluations conducted by Police and EMT personal are so vague an adult can simply say I am fine and be left in an untreated state. If treatment is received it is up to the mentally ill patient to continue that treatment and for the people I met on the street none would have been able to do so, I mean they did not even realize they were sick.  The ones on the street that I did meet whom were medicated only remained medicated while in temporary hospital crisis situations and stopped their medication when they left the facility.
Due to the lack of understanding the illness and laws not in favor of family helping their loved one most of the families I met gave up and let their sons leave. Socioeconomic situations were not in their favor either, see if a parent has conservatorship or guardianship of an adult they then become financially liable for everything that adult requires and state funded medical does not cover live in care facilities. In other words parents that try and want to stay involved carry a hefty bill and the stress of figuring out how to fund the care needs of that person. Those facilities cost anywhere from $900-2500 a month. Yes you can bring them home and care for them there but what happens when you work full time or have personal issues requiring your attention. The system is just not set up to treat mentally ill people for a long term period of time. It really cheats them by not funding more programs designed to teach and educate them as to how to live on their own. Either they get so bad they get lock away in an institution by the court or social services or they get to a point that they appear fine and have absolutely no living skills behind them. It really is an injustice to them. I implore congress to change the laws to help mentally ills persons giving greater access to families by financially supporting them and providing education, by continuous funding of programs like NAMI and local care facilities to empower homeless mentally ill to learn how to live again.
My Police Encounter
It is year 2 and I am still checking on my homeless friend who sleeps in the parking lot. He is getting really sick but he now has shoes and a big Spider Man blanket to cover his almost naked body. Given the condition he was in I just had to approach a police office. I said can you please help him there has to be something you can do. He took one look at me and said if this were my son I would kidnap him and drop him at a crisis center, look if you do it I won’t say anything but there is nothing I can do. Not kidding, this was San Jose Police Department. So I just went on a campaign for this man highlighting him to local stores and shops on the street he liked to sleep in doing so I figured the police or EMT services could not ignore an entire neighborhood.
A few weeks later I could not find him anymore. I did put my phone number in his belongings that last time I saw him with the hope he would call if he needed help. I met another African American male with mental illness during this period whom I would go and have lunch with from time to time. Nice man he just really did not like his medication nor did he think that he needed it. He has been in and out of crisis quite a few times but the reality was the state was not going to help him as he was always deemed able to care for himself. He still walks the streets and I see him regularly, these men are sleeping on concrete in freezing cold temperatures and they are not in their right minds yet if he can say I am fine then he remains in those conditions. We live in a country that will execute an African American male before they will teach, educate and rehabilitate one. It is simply deplorable.
Facilities for the Mentally Ill
About 3 months from my last visit with the homeless man who disappeared, I was contacted by Valley Medical Center’s crisis unit in San Jose California. Apparently this man had been in and out of crisis a few times in the 3 month period, he would leave and sleep on a bench right outside their front door so the doctors finally decided they would keep him in the unit and that he was safer there. Through investigation I knew everything about this man so I was able to answer their questions. They labeled him as a catatonic among a few other things and medicated him as such. He was not catatonic to say the least I once followed him on a 6 hour walk, he was sick yes and needed treatment and rehabilitation.
I visited him often and one day he began to talk. This man is one of the most artistic creative people I have ever met with extreme patience, kind and considerate of your feelings and fully in tune to his surroundings. With a haircut and a shower this man looked like Will Smith’s long lost brother. He was doing well although he had a long way to go this was a huge victory, medicated and off of the hard cold concrete. As time passed he was assigned a social worker and conservatorship was awarded to the social worker through the court. He was moved to a lock down facility known as Crestwood in San Jose California, where he spent the next 6 months.
These facilities are supposed to help the people that enter them and on some levels it did but it was not and is not enough. These facilities are labeled as rehabilitation centers. Rehabilitation means to restore something to its original state. I would like to hear the way our government defines that because in order to accomplish a task such as this with mentally ill persons, it would require facility workers trained to rehabilitate not one’s trained to shove medication in you and leave you in a room alone. It would require facility workers to become mental health care providers teaching and encouraging these patients to rehabilitate not using statements like, well if he does not want to do something he does not have to and give him a bag of condoms just in case he wants to have sex in the facility. This is not health care this is caging people and giving them no future. This is health workers who have not a clue what providing health care is. I could account for a time when I visited that the staff member fell asleep in the visiting room while families were there to see their love one or another time when I arrived the man I came to visit had a rash all over his body that went totally unnoticed by staff and I had to demand he be allowed to see a medical doctor.
I deeply connected myself within the facility because this man needed an advocate and encouragement, something he was not finding within his surroundings. I attended his discharge meetings and eventually took conservatorship because he had no one else to turn to that would look out for his best interest. People that work in these facilities or for them tend to no longer see the person as you can visually see it when you are there, they become cattle at medication time and a file at others. I was completely set back by the things I observed. It is no wonder the doors of these facilities are constantly revolving with the same faces over and over again and until the law holds these facilities to a higher standard this will remain the story for mentally ill patients.
On to Crisis Housing we move
Discharge meetings are interesting given the fact that a person requires complete truth to make educated decisions regarding the future of another human being. I was sold a great story which turned out to be a pretty deceptive lie. I was told this man would go onto a new facility where he would learn livings skills and have constant supervision learning how to get around like taking a bus or going to a library and that this would be a transition house where he would live for 6 weeks. I was also told Medical covered the fees of the facility and that there was nothing for me to worry about. Well, they lied; the program was 2 weeks not 6, he could come and go as he pleased and if he did not follow the rules he would be asked to leave and the big one medical did not cover it I had to pay for it.
The facility itself was far better than the previous lock-down no future unit but the truth is no one can learn living skills in 2 weeks I mean even 6 weeks was pushing it. It takes longer than 2 weeks to break bad habits and to learn new ones. This entire situation was setting this man up for failure, from lying to get him there to the oddly strange idea 2 weeks would be just the right amount of time to rehabilitate a person. The fact is even as a conservator I had no choice in the matter choice is taken away by a board of people whom swear to know best however, I am sure that if I asked what this man’s favorite color was or favorite food the answer would have been I do not know. You cannot know best unless you know him and genuinely know the history of a person. He had lived in a home before, he had a family before and he preferred the streets to shelter and a shower, he did not understand his value as a human being. The treatment this man required would take longer than 2 weeks and more than let me show you the bus route. The financial side of that proposes far too many difficulties for most working people myself included.
A lot of truth
Mental Health Care needs to become a priority in this country. 42 million people nationwide suffer from some form of mental illness, which is 1 and 5 Americans. With numbers so high and increasing every year one would like to believe a higher priority would be placed on such a matter. Funding, Training, and the reconstruction of the system from intake to discharge should be placed in the highest of priorities. Families need and require more access in the decision making process of admitting their adult family member into a facility in a time of crisis. Transparency and honesty should take precedence over opening a bed for the next person, there should be enough beds to service all. Whole, healed and functioning people should be the ultimate goal for our society.


Wednesday, December 10, 2014

CIA Torture Report there is so much is left unsaid


A Little Honesty

As I began reading this much abbreviated report, I like many other people felt sad, disgusted and angry. The horrifying details of this report require real answers and not just for the people of this nation but for the people globally. This report does not simply effect 119 people because that unfortunately is not the reality of the situation. 54 countries played a part in the abuses described in the CIA Torture Report. Many detainees who were released have even openly stated these abuses are still live and active today. Honest investigative journalism brought down the claims that torture was not being done in secret prisons long ago as Jeremy Scahill found evidence that these practices were still in play even in 2011. 
 (The CIA's Secret Sites in Somalia) 



Where did you hide them all?

Have you ever heard the term Black Site? It is a military term for an unacknowledged “Black Project” or better known as a prison operated by the United States CIA. These prisons are generally operated outside of US legal jurisdiction and they were acknowledged by President Bush in a speech he made on September 6, 2006. Many countries that were exposed in the torture report have constantly denied being a host country to these prisons. In many writing that have previously gone unacknowledged or even discredited by missing or abducted persons families laid claim to their family members being taken and placed in secret prisons worldwide. A good example to refer to would be Dr. Aafia Siddiqui who simply disappeared as the story is told by her sister and family.  
 
 



The Guantanamo Lie

In a video published on August 13, 2014 two Vice News Reporters were given access to Guantanamo Prison. The Department of Defense told Vice News that they were more open to the media’s presence then they had previously been in the past. With the claims that Guantanamo had a new mission to be transparent I was surprised by what I was able and not able to see in this 27 minute video. If you pay close attention to the little details you will find that although some things have indeed changed others have not and it does raise concern and give some validity to claims that torturous procedures are still taking place today.   (Vice News Guantanamo: Blacked Out Bay)


                                                      Former Guantanamo Detainee:




Torture and Writing New Laws

Waterboarding, rectal feeding, beating, slapping, kicking, stripping, sleep depriving, placed in diapers, chained in positions that are painful and impossibly cumbersome, confined in boxes, left in the dark, humiliated and left in states of hallucination, begging for death and even frozen to death. A short but brutal horrifying list of the some of the procedures described in the Torture Report. Human beings faced inexcusable acts of brutality at the hands of people not properly trained to interrogate with ideas formed on dark harmful psychology whom also were not properly trained to investigate nor interrogate situations such as these. In reading this report I ask myself these questions:


On September 14, 2001 The Authorization for use of Military Force was passed by the United States Congress (PDF PLAW107) , The authorization granted the President the authority to use all" necessary and appropriate force" against those whom he determined "planned, authorized, committed or aided" the September 11th attacks, or who harbored said persons or groups. What and who defines appropriate? I am not a lawyer but I can read and if the claim is that no one in Congress knew what was happening to these detainees I am going to call your bluff because according to this you approved all means of force. 


Torture in all forms was banned by the 1948 Universal Declaration of Human Rights in which the United States participated in drafting. International law states that we must protect all citizens from terrorists. The fundamental of all human rights is the right to life. Acts of terror are considered crimes against humanity and these are generally punishable by death or long term prison sentences which do not include the right to torture. Torture in and of itself is a crime and the practice of it needs accountability and punishment for the use thereof. These actions demand and require accountability. If one can simply be pardoned as mainstream media has suggested then other nations facing similar charges under international law should receive the same pardon. I mean why bother holding anyone accountable at all? It is time for all Nations to come clean and report their abuses and abide by International Law once and for all, to do away will all practices that defeat the very principles in which we proclaim to live by. If the United States is the leader in all international matters and in times of trouble the US is the one looked to for support and as an example, than lead now and do the right thing.